Updates from the December 2018 convening of the America Society of Hematology on MDS.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
| Sat, 07/20/2024 - 9:45am (EDT) | Low-Risk MDS |
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| Sat, 07/20/2024 - 12:45pm (EDT) | Nutrition and Bone Marrow Failure |
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Watch Past Webinar Recordings
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Joshua Sasine, MD, PhD
Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)
- Presenter: David Steensma, MD, FACP
Dr. Steensma explains the relationship between Agent Orange and Myelodysplastic Syndromes in this webinar.
Recorded on October 16, 2018
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Shyamala Navada, MD
Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)
- Presenter: Amir Fathi, MD
This webinar explains how myeloid malignancies form in plain language for patients and families.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)
- Presenter: Stephen Oh, MD
This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS.
Topic(s): Bone Marrow Transplant
Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF.
Topic(s): Managing Your Treatment
Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)
This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Ryan J. Mattison, MD
Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).
Topic(s): Bone Marrow Transplant
Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease).
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
- Presenter: James Foran, MD
Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Elizabeth Griffiths, MD
A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria).
Topic(s): Aplastic Anemia
- Presenter: Amy E. DeZern, MD, MHS
Dr DeZern provides a thorough review of the three major classificiations of aplastic anemia including diagnosis, treatment and prognosis.
Topic(s): Pediatric Bone Marrow Failure Diseases
- Presenter: Michael Pulsipher, MD
Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases.
Topic(s): Acute Myeloid Leukemia (AML)
- Presenter: Michael Savona, MD
Dr Savona explains what options are available for patients with AML outside of transplant.
Topic(s): Managing Your Treatment
- Presenter: Ramiro Garzon, MD
All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
This webinar discusses issues related to PNH.
Topic(s): Acute Myeloid Leukemia (AML)
- Presenter: Jacqueline Garcia, MD
Dr. Jacqueline Garcia describes diagnostic and therapeutic options for AML, or Acute Myeloid Leukemia.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies
- Presenter: Michael Keng, MD
Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases.
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Special thanks to Abbvie and Taiho Oncology