In this conference session, Dr. Krisstina Gowin DO discusses best practices when living with bone marrow failure diseases.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
Sat, 07/20/2024 - 9:45am (EDT) | Low-Risk MDS |
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Sat, 07/20/2024 - 12:45pm (EDT) | Nutrition and Bone Marrow Failure |
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Watch Past Webinar Recordings
- Presenter: Krisstina Gowin, DO
In this webinar, Dr. Sandeep Jain will discuss the diagnosis and treatment of ocular GvHD which occurs in 40-60% patients following an allogenic transplant. Ocular GVHD may lead to severe ocular surface disease, which can significantly diminish quality of life and restrict daily activities. He will answer questions from participants at the end of the presentation.
- Presenter: Linda Burns, MD
- Presenter: Nandita Khera, MD, MPH
In this webinar Drs. Linda Burns and Nandita Khera will discuss the advances in transplantation for older patients with MDS. Stem cell transplants are not frequently offered to older patients with high-risk myelodysplastic syndromes (MDS). According to a study from the Blood and Marrow Transplant Clinical Trials Network (BMTCTN 1102), older patients with MDS may indeed achieve a survival benefit from stem cell transplant. At the end of the webinar, there will be a questions and answer session. Questions can be submitted in advance at help@aamds.org.
- Presenter: Satheesh Chonat, MD
In this webinar, Dr. Satheesh Chonat will discuss what is PNH, how PNH is diagnosed and what treatment options are available to pediatric patients. After the presentation, Dr. Chonat will answer questions from participants. Advance questions can be submitted to help@aamds.org.
- Presenter: Nandita Khera, MD, MPH
- Presenter: Linda Burns, MD
In this discussion, Dr. Nandita Khera of Associate Professor of Mayo Clinic and Dr. Linda Burns Sr. Scientific Director of CIBMTR discuss which treatments are available to older MDS patients.
- Presenter: Richard Lin, MD, PhD
This session will focus on how and when transplant is an option for bone marrow failure patients, including the risks and benefits of various approaches to transplantation.
- Presenter: Jane Meier Hamilton, RN, MSN
Being a caregiver can be physically and emotionally stressful. Caregivers do not often realize their own emotional and physical health is compromised. This session will help caregivers understand the impact of caregiving and offer tips on how to maintain their own health.
- Presenter: Allyson Pishko, MD
This session will provide a comprehensive overiew of PNH, from diagnosis to treatment.
- Presenter: Dale Schaar, MD, PhD
This session will provide a comprehensive overview of high risk MDS and the transition to MDS, from diagnosis to treatment.
- Presenter: Anna Koget, DO
This session will provide a thorough overview of aplastic anemia, from diagnosis to treatment
- Presenter: Adrienne Phillips, MD, MPH
This session provide a comprehensive overview of low risk myelodsyplastic syndromes (MDS).
In this webinar, Dr. Andrew Brunner will present the most promising research presented at the 2021 European Hematology Association (EHA) and American Society of Clinical Oncology (ASCO) meetings for MDS.
- Presenter: Catherine J. Lee, MD
Dr. Catherine Lee will provide a comprehensive overview of chronic and acute graft vs host disease ("GvHD") which is a complication of bone marrow transplant. While some patients have very mild GvHD, many patients have more severe and long term disease. Dr. Lee will discuss pre-transplant prevention and post-transplant management of GvHD.
- Presenter: Dr. Jason Mendler
Dr. Jason Mendler will give a brief MDS overview and then answer questions from participants. This interactive webinar offers you the opportunity to ask questions that are answered directly by a MDS Expert.
- Presenter: Sarah C. Vij, M.D.
Dr. Sarah Vij will deliver a presentation on how male fertility can be affected by bone marrow failure diseases and related treatments and what steps can be taken to preserve fertility. This webinar will include discussions suitable for adult patients, family members, and caregivers and may not be appropriate for a young audience.
- Presenter: Elizabeth Griffiths, MD
Dr. Elizabeth Griffiths will give a brief PNH overview and then answer questions from participants. This interactive webinar offers you the opportunity to ask questions that are answered directly by a PNH Expert.
This webinar focuses on the latest in research presented at the 2021 European Hematology Association(EHA) and American Society of Clinical Oncology (ASCO) annual meetings. Dr. Austin Kulasekararaj has selected a number of abstracts (research summaries) and provides a high-level assessment of new and ongoing research into treating "> ">aplastic anemia and/or PNH.
- Presenter: Dr. Donna Hammond
This webinar is suitable for patients, families and caregivers who want to learn more about the implications of chemotherapy-induced peripheral neuropathy. Approximately 30% - 40% of patients who undergo chemotherapy for a bone marrow failure condition experience peripheral neuropathy and the effects can linger after completing treatment. Dr. Hammond will discuss the best treatment and management options for patients.
- Presenter: Constandina Herbert, MN, RN, BMTCN
Constandina Herbert, MN, RN, BMTCN of the Fred Hutchinson Cancer Research Center will review all of the things that patients, families, and caregivers should know before undergoing a transplant. This interactive session will cover topics ranging from preparing the home for post-transplant recovery to recommendations for rehabilitative therapies and potential complications.
This webinar is suitable for patients, families and caregivers who are considering transplant as a curative option for their bone marrow failure disease or those who have already undergone transplant.
Dr. Yang will discuss the cardiac complications that can occur post-transplant and what pre-transplant diagnostic tests should be conducted and what the transplant team can do post-transplant to manage cardiac health.
Patient Education Sponsors
Our Diamond Level Sponsors:
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Our Gold Level Sponsors:
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Our Silver Level Sponsors:
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Our Bronze Level Sponsors:
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Special thanks to Abbvie and Taiho Oncology