How to Manage Chemo Brain with Dr. Jorg Dietrich
What is "Chemo Brain" and how is it managed? Find out the best approaches for dealing with this common side effect in this recording with Dr. Jorg Dietrich.
Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Meningitis and PNH with Dr. Bhumika Patel
Dr. Bhumika Patel explains why meningitis can occur in patients with PNH and how it is both treated or prevented.
COVID-19 And Vaccines For Patients - with Dr. Veronica Dioverti Prono
When should patients be vaccinated, and with which version of the COVID-19 Vaccine? Learn all about how each type of vaccine works and which patients with bone marrow failure diseases should be vaccinated.
What is a Clinical Trial? With Olga Rios, RN, of the NHLBI
What is a clinical trial? Why should a patient consider participating in one? Olga Rios, RN, offers a brief explanation in this recording.
Dealing with Fatigue, with Christina Cline, RN
Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue.
Learn how patients can communicate about their fatigue with their health care team as well as which strategies may help.
Intermediate Risk MDS with Dr. Swapna Thota
What does the diagnosis, Intermediate-Risk MDS mean? Learn from Myelodysplastic Syndromes expert, Dr. Swapna Thota, in this recording.
Diagnosing MDS, with Dr. Joshua Zeidner
Dr. Joshua Zeidner explains why it is critical for patients to receive an accurate diagnosis for MDS, or Myelodysplastic Syndromes. He describes the steps to determine the presence of the disease, and also discusses some of the treatments available.
Blood Clots in Patients with PNH, with Dr. Maxim Norkin
Dr. Norkin explains why and how patients with PNH can develop blood clots, as well as prevention and treatment.
Treating AML in Older Adults, with Dr. Timothy Pardee
Dr. Timothy Pardee discusses treatments for AML, or Acute Myeloid Leukemia, occurring in older adults.
Advances in Treating PNH (Paroxysmal Nocturnal Hemoglobinuria) with Dr. Allyson Pishko - 2022
Dr. Allyson Pishko shares the latest advances in the treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria.
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