Order Patient Educational Materials

AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in diseases.

If you are a patient: please fill out the form below and a complete information packet will be mailed to you free of charge. Alternatively you can download materials directly.

If you are a health professional (physician, nurse, practice manager, social worker, etc.): please fill out the form below, and make sure to note quantities in the "special instructions" area. These packets will be mailed to you free of charge. Alternatively you can download materials directly.

You can also call us directly at (301) 279-7202 ext.116 or toll-free at (800) 747-2820 to request materials by telephone.

Ordering Materials for Shipment Outside of the U.S.

We are still experiencing shipping restrictions to some areas outside of the U.S. If you are ordering materials for shipment outside of the U.S., please contact us at (800) 747-2820 or send an email to help@aamds.org for assistance.

Patient Guides
Select the patient guide(s) you would like to receive (choose all that apply)
AAMDSIF patient guides are complete resources, written and reviewed by recognized medical professionals who are experts in bone marrow failure disease.
Fact Sheets
Select the fact sheet(s) you would like to receive (choose all that apply)
AAMDSIF Fact Sheets are one or two page sources of information on diverse subjects related to bone marrow failure disease.
Research Summaries for Patients
Select the research summary(s) you would like to receive (choose all that apply)
AAMDSIF Research Summaries are clearly written summaries of the most recent research on rare blood cancers and bone marrow failure diseases presented at the most prestigious and important international scientific gatherings.
Aplastic Anemia Toolkit
Select the Aplastic Anemia Toolkit you would like to receive
To learn more, see our Aplastic Anemia Toolkit page.
MDS Toolkit
Select the MDS Toolkit you would like to receive
To learn more, see our MDS Toolkit page.
PNH Toolkit
Select the PNH Toolkit you would like to receive
To learn more, see our PNH Toolkit page.
Required Information
Email and Privacy
You understand and acknowledge that you are providing the above information, including any personally identifiable information, to AAMDS, the collection, storage and use of which is governed by AAMDS’ Privacy Policy. By checking the ‘I agree’ box below, you are agreeing to the terms and conditions of our Privacy Policy and affirming that you wish to receive the information or services identified as part of this form. If you do not agree to the terms and conditions of our Privacy Policy or do not wish to receive the information or services identified as part of this form, please check the “I do not agree” box below. Please note that AAMDS does not sell any personal information.
How did you hear about us?
Please select all that apply.
Please provide us with the following information to complete your request.
Optional Information
In order to keep you informed with relevant news, events, and updates, we ask that you provide us with this optional information.
Special Instructions
If you require multiple copies of any of these documents, please make note of which documents, and the specific quantities desired here.
If you require multiple copies of any of these documents, please make note of which documents, and the specific quantities desired here.

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.

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