Diseases like aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH) are rare and difficult to understand. Patients who learn about their condition can take an active role in their treatment by asking good questions of their medical team and advocating for their own needs
AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
AAMDSIF patient guides are complete resources, written and reviewed by recognized medical professionals who are experts in bone marrow failure disease.
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure diseases.
Our patients, families, and caregivers have asked for more ways to learn about rare blood cancers and bone marrow failure diseases, so we've developed the Podcast for Patients series featuring experts on a range of topics related to disease management, treatment updates and survivorship.
The Frequently Asked Questions (FAQ) section provides easy-to-understand answers to the questions we hear most often from patients and families. Don't see the answer to your question here? Send your question to our patient educator now.