Personalized Search
Displaying 201 - 220 of 965
10 years after diagnosis, Leigh Ann needed a
bone marrow transplant
bone marrow transplant:
A bone marrow transplant (BMT) is also called a stem cell transplant (SCT) or hematopoietic stem cell transplant (HSCT).The procedure replaces unhealthy blood-forming stem cells with healthy ones and offers some patients the possibility of a cure. But for many patients, a BMT is not an option due…
Podcast Episode last updated
.
Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.
Podcast Episode last updated
.
Persistence, Advocacy, and a
Clinical Trial
Clinical Trial:
A type of research study that tests how a drug, medical device, or treatment approach works in people. There are several types of clinical trials. Treatment trials test new treatment options. Diagnostic trials test new ways to diagnose a disease. Screening trials test the best way to detect a…
: Theresa is now a Survivor!
Podcast Episode last updated
.
Dr. Eunice Wang explains the origin and treatment of
secondary MDS
secondary MDS:
A type of MDS that is caused by a previous treatment foranother another disorder or disease. Treatments typically associated with secondary MDS include radiation therapy and chemotherapy used to treat cancer. Also called therapy-related MDS, T-MDS.
. Dr. Wang is the Chief of the Leukemia Service at Roswell…
Podcast Episode last updated
.
From a sunny, lively retirement to MDS then AML? That was Shirley's life! After treatment in a
Clinical Trial
Clinical Trial:
A type of research study that tests how a drug, medical device, or treatment approach works in people. There are several types of clinical trials. Treatment trials test new treatment options. Diagnostic trials test new ways to diagnose a disease. Screening…
Podcast Episode last updated
.
Here is a discussion of the recent approval of Luspatercept with Dr. Amit Verma, Director of the Division of Hematologic Malignancies and a Professor of Oncology at the Albert Einstein College of Medicine in New York City. He explains the results of
clinical trials
clinical trials:
Clinical research is at the heart of all medical advances, identifying new ways to prevent, detect or…
Podcast Episode last updated
.
Dr. Tiffany Tanaka from the University of California, San Diego explains the development of High-Risk MDS into AML. She talks about new diagnostic and treatment regimens for these patients.
Podcast Episode last updated
.
Terri shares the journey of Thomas' surprise diagnosis, rigorous treatment, and wonderful survivorship in this conversation.
Podcast Episode last updated
.
Mark had no symptoms prior to diagnosis. Even more surprising was the "watch and wait" treatment plan! Listen to this recently recorded episode where Mark describes living as an MDS survivor now.
Podcast Episode last updated
.
Learn all about the risks, benefits, and side effects of the transplantation process.
Podcast Episode last updated
.
The recently-approved hypomethylating treatment, Inoqvi, is a daily oral version of two IV or subcutaneous medications. Listen to Dr. Amer Zeidan of Yale Cancer Center explain which MDS patients could qualify, and what it means for their treatment at the link.
Podcast Episode last updated
.
Kat hears patients ask: "I have this
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
problem ...…
Podcast Episode last updated
.
Dr. Abdulraheem Yacoub talks with Leigh Clark about MDS-MPN overlap. He includes how molecular testing is used in determining treatment options.
He also discusses the newly approved drug, Luspatercept, for the treatment of MDS and MDS-MPN overlap syndromes.
Podcast Episode last updated
.
Dr Vu Duong explains risk classifications for MDS. He dives into IPSS and IPSS-R scores, focused on helping patients to understand the meanings of high-risk and low-risk MDS.
Podcast Episode last updated
.
Dr. Ehab Atallah discusses the good news about treatment for MDS, Myelodysplastic Syndromes, for patients ages 65 and older.
Podcast Episode last updated
.
Can sleep affect your treatment for
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
diseases? Dr.…
Podcast Episode last updated
.
Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal…
Podcast Episode last updated
.
Listen to Duane's story, leading to his 2009 transplant, and continuing survivorship!
Podcast Episode last updated
.
Patrice banned "stinkin' thinkin'" from her mind as she began treatment for aplastic
anemia
anemia:
(uh-NEE-mee-uh) A condition in which there is a shortage of red blood cells in the bloodstream. This causes a low red blood cell count. Symptoms of anemia are fatigue and tiredness.
. Later, she'd continue that practice during her
bone marrow transplant
bone marrow transplant…
Podcast Episode last updated
.
"Never give up!" That's Brandi's advice to patients. Her diagnosis was months in coming, and then more time to find the best allogenic donor for her transplant---over 19 months in the hospital between diagnosis and successful transplant.
Podcast Episode last updated
.