Personalized Search
Displaying 261 - 280 of 1079
Basic description of
aplastic Anemia
aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
and how it affects your
bone…
Downloadable last updated
.
Node ID (debugging only): 2543
This patient guide on
myelodysplastic syndromes
myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood cell count for at…
(MDS) begins…
Downloadable last updated
.
Node ID (debugging only): 2557
Get the facts and information you need on
paroxysmal nocturnal hemoglobinuria
paroxysmal nocturnal hemoglobinuria:
(par-uk-SIZ-muhl nok-TURN-uhl hee-muh-gloe-buh-NYOOR-ee-uh) A rare and serious blood disease that causes red blood cells to break apart. Paroxysmal means sudden and irregular. Nocturnal means at night. Hemoglobinuria means hemoglobin in the urine. Hemoglobin is the red…
Downloadable last updated
.
Node ID (debugging only): 2558
This patient guide on AML begins with blood basics, AML diagnosis, and then specifics on symptoms, tests, actively managing your AML-related healthcare, and treatment options. *Disclaimer: New treatments may have been approved since the booklets below were published. It is important to speak with a healthcare provider for up-to-date treatment options.
Downloadable last updated
.
Node ID (debugging only): 2542
Form to record symptoms or reactions to treatment and medications that can be shared with health care providers
Downloadable last updated
.
Node ID (debugging only): 2539
Emergency health information card for patients who have received a transplant.
Downloadable last updated
.
Node ID (debugging only): 2554
Form to keep track of
platelet
platelet:
The smallest type of blood cell. Platelets help the blood to clot and stop bleeding. Also called a thrombocyte.
transfusions as part of MDS treatment
Downloadable last updated
.
Node ID (debugging only): 2598
Chart to record medical professionals, pharmacy contacts, patient support organizations and others involved with your health care.
Downloadable last updated
.
Node ID (debugging only): 2540
Emergency health information card for patients who have not received a transplant.
Downloadable last updated
.
Node ID (debugging only): 2555
Form to record symptoms or reactions to treatment and medications that can be shared with health care providers
Downloadable last updated
.
Node ID (debugging only): 2583
Learn more about how to find a
clinical trial
clinical trial:
A type of research study that tests how a drug, medical device, or treatment approach works in people. There are several types of clinical trials. Treatment trials test new treatment options. Diagnostic trials test new ways to diagnose a disease. Screening trials test the best way to detect a…
.
Downloadable last updated
.
Node ID (debugging only): 2549
Form to keep track of
platelet
platelet:
The smallest type of blood cell. Platelets help the blood to clot and stop bleeding. Also called a thrombocyte.
transfusions as part of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets…
Downloadable last updated
.
Node ID (debugging only): 2541
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know about you to help you during a medical emergency.
Downloadable last updated
.
Node ID (debugging only): 2569
Descriptions of the criteria to determine severity of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
.
Downloadable last updated
.
Node ID (debugging only): 2545
As you search online, you will find websites from many different sources. These seven questions will help you analyze and evaluate the credibility of each site you review. Many of these details can also be found in a website's "About Us" or "Contact Us" section.
Downloadable last updated
.
Node ID (debugging only): 2562
This publication offers summaries of selected abstracts presented at the 2021 Meetings of the European Hematology Association (EHA) and the American Society of Clinical Oncology (ASCO). It provides new and updated information about new research into the diagnosis, treatment and prognosis of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in…
Downloadable last updated
.
Node ID (debugging only): 2568
What is EMPAVELI®? EMPAVELI® (previously known as
pegcetacoplan
pegcetacoplan:
EMPAVELI® is the first PNH treatment that binds to complement protein C3. It was approved by the Food and Drug Administration in May 2021 for treating adult patients with paroxysmal nocturnal hemoglobinuria (PNH). EMPAVELI is given skin (subcutaneously) by using the Empaveli injector or with an…
) is the…
Downloadable last updated
.
Node ID (debugging only): 2564
Chronic lymphocytic leukemia (CLL)
Chronic lymphocytic leukemia (CLL):
(CRAW-nik lim-foe-SIGH-tick loo-KEE-mee-uh) Chronic lymphocytic leukemia is a type of blood, lymph node and bone marrow cancer in which too many abnormal white blood cells called lymphocytes accumulate in your body.
is a type of cancer that involves certain white blood cells (lymphocytes) that develop in the
bone…
Downloadable last updated
.
Node ID (debugging only): 2560
Would you like to connect with other patients and families in your own town? Learn how you can participate in our volunteer-led Community Connections-local groups designed to inspire the creation of community organizations for the purpose of connecting and supporting patients and families, as well as raising awareness and funds for AAMDSIF programs.
Downloadable last updated
.
Node ID (debugging only): 2561
Form to keep track of
blood transfusions
blood transfusions:
A blood transfusion is a safe and common procedure. Most people who have a bone marrow failure disease like aplastic anemia, MDS or PNH will receive at least one blood transfusion. When you receive a blood transfusion, parts of blood from a donor are put into your bloodstream. This can help some…
as part of PNH treatment
Downloadable last updated
.
Node ID (debugging only): 2584