Find a Specialist
Use the AAMDS Map of Specialists to find a PNH expert
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Preparing for Medical Visits
Guidelines and suggested questions for making the most of your health care appointments
Managing Side Effects of Treatment
Summary of the common side effects of PNH treatments and tips for managing them
Special Precautions for PNH
PNH patients need to take a few special precautions
Explore Clinical Trials
Learn more about how to find a clinical trial
Understanding the Symptoms of PNH
Review of the range of PNH symptoms based on low blood counts
What is PNH?
Basic description of PNH and how it affects your bone marrow and blood
Order Patient Educational Materials
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure
Characterizing clinically significant extravascular hemolysis in adults with PNH on ravulizumab or eculizumab treatment
In patients with paroxysmal nocturnal hemoglobinuria paroxysmal nocturnal hemoglobinuria:
Understanding PNH Treatment Options
Summary of FDA-approved medicines for treating PNH and transplantation options.