MarrowForums
MarrowForums provides free discussion forums for patients with bone marrow failure diseases
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MarrowForums provides free discussion forums for patients with bone marrow failure diseases
A list of organizations & programs that may provide financial resources & other assistance
Aplastic Anemia and PNH Research Summaries for Patients from the 2018 American Society of Hematology Annual Meeting
Summary for patients from the seventh International Bone Marrow Failure Disease Scientific Symposium
SOLIRIS is a prescription medicine called a monoclonal antibody. SOLIRIS is used to treat adults with a disease called Paroxysmal Nocturnal Hemoglobinuria (PNH)
VOYDEYA is a prescription medicine used along with ravulizumab or eculizumab to treat breakdown of red blood cells that takes place outside of blood vessels (extravascular hemolysis), in adults with paroxysmal nocturnal…
ULTOMIRIS® is a prescription medicine called a monoclonal antibody. ULTOMIRIS® is used to treat adults and children 1 month of age and older with a disease called Paroxysmal Nocturnal Hemoglobinuria (PNH)
FABHALTA, a complement factor B inhibitor, is the first oral medication approved to treat adults with paroxysmal nocturnal hemoglobinuria (PNH)
Form to keep track of blood transfusions as part of PNH treatment
Form to record symptoms or reactions to treatment and medications that can be shared with health care providers