Paroxysmal Nocturnal Hemoglobinuria (PNH)

Form to keep track of platelet transfusions as part of PNH treatment

Chart to record medical professionals, pharmacy contacts, patient support organizations and others involved with your health care

Form to record health care visits and notes

Learn how to build a strong healthcare team

Tips for improving medication adherence

Use the AAMDS Map of Specialists to find a PNH expert

Guidelines and suggested questions for making the most of your health care appointments

Summary of the common side effects of PNH treatments and tips for managing them

PNH patients need to take a few special precautions

Learn more about how to find a clinical trial