Paroxysmal Nocturnal Hemoglobinuria (PNH)
Carefree: Finding Respite
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
COVID-19
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Jane Hamilton discusses the benefits of respite care for caregivers. Learn tips and tools to hire a respite worker, how to partner and share the care.
Managing Treatment Symptoms with Diet
Topic(s)
Managing Your Treatment
In this webinar, Joanna Myers Casale, RD, CSO, discusses how the foods patients choose can help them cope with side effects, such as loss of appetite, nausea, vomiting, diarrhea, chewing and swallowing difficulties, and taste changes. The recording includes questions from…
Living with Bone Marrow Failure: Stress Management and Survivorship
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Areej El-Jawahri, MD
Areej El-Jawahri, MD, and Elyse R. Park, PhD teach patients coping strategies and practical tips for easing the stress of living with a bone marrow failure disease. Patients with aplastic anemia, PNH, or MDS benefit from viewing this recorded program.
Updates on Aplastic Anemia and PNH from ASH-2021, ASCO-2022, and EHA-2022 Meetings
Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2021, European Hematology Association…
PNH Experts Discuss: What's Next for PNH? Brief session at the 2022 Patient and Family Hybrid Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Ilene Weitz, MD
Satheesh Chonat, MD
These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.
Transplant for Aplastic Anemia, MDS, and PNH from the 2022 Buffalo Patient and Family Hybrid Conference
Topic(s)
Bone Marrow Transplant
Presenter(s)
George Chen, MD
Has a bone marrow transplant been suggested as a treatment for aplastic anemia, MDS, or PNH? George Chen, MD, explains why your specialists may recommend this treatment, along with risks and benefits. He takes questions at the end of the recording from the attendees.
Living Well with Bone Marrow Failure Disease from the 2022 Buffalo Patient and Family Conference
Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Megan Pailler, PhD, Assistant Professor of Oncology, provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow…
Living with PNH - from the 2022 Buffalo Patient and Family Hybrid Conference
Topic(s)
Managing Your Treatment
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
This session features Dr. Bart Scott. He describes how PNH patients can live their best lives with treatments and disease management. Dr. Scott presented this session at the 2022 Buffalo Patient and Family Conference.
Life after Transplant: Patient Panel Discussion
Topic(s)
Bone Marrow Transplant