Understanding the Symptoms of PNH
Review of the range of PNH symptoms based on low blood counts
Paroxysmal Nocturnal Hemoglobinuria (PNH)
What is PNH?
Basic description of PNH and how it affects your bone marrow and blood
Order Patient Educational Materials
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure
Characterizing clinically significant extravascular hemolysis in adults with PNH on ravulizumab or eculizumab treatment
In patients with paroxysmal nocturnal hemoglobinuria paroxysmal nocturnal hemoglobinuria:
Understanding PNH Treatment Options
Summary of FDA-approved medicines for treating PNH and transplantation options.
Understanding Aplastic Anemia and Overlapping Diseases
Learn more about the connection between aplastic anemia and other bone marrow failure diseases.
Transplant Patient Card
Emergency health information card for patients who have received a transplant.
Non Transplant Patient Card
Emergency health information card for patients who have not received a transplant.
Instructions
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…
10th International Bone Marrow Failure Disease Scientific Symposium
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
The 10th International Bone Marrow Failure Disease Scientific Symposium will convene physicians, laboratory researchers and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and clarify promising directions for…