Paroxysmal Nocturnal Hemoglobinuria (PNH)
Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.
BACKGROUND:
Fatigue is distressing and affects quality of life (QoL) among patients with myelodysplastic syndrome (MDS), aplastic anemia (AA), and paroxysmal nocturnal hemoglobinuria (PNH).
Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness
My Diagnosis
In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.
PNH Patient Travel Assistance Fund
The AAMDSIF PNH Patient Travel Assistance Fund is available to U.S.-based PNH patients for up to $800 in travel assistance per patient, per year, to see a PNH specialist or get a second opinion from a PNH specialist. Grantees will be permitted to travel with one companion utilizing funds from the grant. Grants will be awarded based on the thorough completion of the required application form and the submission of all required documentation.
I'm Like You: Brandi Lewis
Brandi was hooked on acting from the time she was three and played a munchkin in the Wizard of Oz. She eventually sidelined her first love to study political science at the University of Northern Alabama.
I'm Like You: Ricky Smith, Jr.
29-year-old Ricky Smith, Jr.
AAMDSIF Virtual Film Festival
Her Unlikely Kin (2016)
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Kenneth J. Raimondi, Director |
