Paroxysmal Nocturnal Hemoglobinuria (PNH)

PNH Foundation Announces Grants For Patients

The PNH Research and Support Foundation seeks to ensure that all PNH patients can see a PNH specialist to pursue the best course of treatment. The Foundation also helps patients with costs related to stem cell transplants in cases where this treatment is required. The PNH Foundation may be able to provide financial aid up to $3,000 per eligible, U.S.-based PNH patient with demonstrated financial need for the following costs:

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Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis

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“I was fortunate to have a medical background, because with it I was able to help diagnose myself with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and

AA&MDSIF survey on the Path to PNH Diagnosis

AA&MDSIF along with our strategic partner, the PNH Research and Support Foundation (PNHF), heard from 163 patients who shared their patient journey from an initial “disease related medical episode” or incidental finding, to document the path to the PNH expert hematologist

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Clinical Trials Report for March 2015

We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH.

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A Story of Hope

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“Faith, hope and endurance are imperative to living a life full of possibilities with PNH,” says Emma Pritchett, who has lived with paroxysmal nocturnal hemoglobinuria

End-of-Life Resources

The Aplastic Anemia Aplastic Anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, whit

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David Margolis, MD

Institution

Children’s Hospital of Wisconsin

Physician Status

accepting new patients

Primary Disease Area of Focus

Acute Myeloid Leukemia (AML)

Aplastic Anemia

Myelodysplastic Syndromes (MDS)

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Pediatric

About

David Margolis, MD, received his medical degree from the University of Wisconsin-Madison in 1989. He is currently a professor of pediatrics at the Medical College of Wisconsin, located in Milwaukee, and is program director of Children’s Hospital of Wisconsin’s Blood and Bone Marrow Transplant Program. His clinical and research interests include taking care of children and young adults with aplastic anemia as well as alternative donor blood and bone marrow transplants for children and young adults with aplastic anemia, sickle cell anemia and leukemia.

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Blood Transfusion Safety and Risks

Negative side effects of blood transfusion therapy are uncommon. Blood banks, hospitals, and health-care providers take many precautions to minimize risks before each blood transfusion.

Blood banks test each unit of blood to find out its ABO type and Rh status. In the United States, after a hospital laboratory receives a blood unit from the blood bank, the laboratory tests the unit again.