Pure Red Cell Aplasia (PRCA)

Health-Related Quality of Life, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium

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Presenter(s)

Namrata Chandhok, MD

Thomas LeBlanc, MD, MA

Fabio Efficace, PhD

Alison R. Kavanaugh

Pamela C. Egan, MD

Wil L. Santivasi, MD

The session was recorded at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium, Co-Chairs Namrata Chandhok, MD, and Thomas LeBlanc, MD, MA Topics and speakers included: How can we measure quality of life in MDS, to inform interventions? - Fabio Efficace, PhD…

Non-Transplant Therapies for Marrow Failure, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium

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Presenter(s)

Carlos DeCastro, MD

Phil Scheinberg, MD

Regis Peffault de Latour, MD, PhD

Julian Sevilla, MD, PhD

Kasiani Myers, MD

Suneet Agarwal, MD, PhD

This session was presented at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium; Co-Chairs Carlos DeCastro, MD, and Phil Scheinberg, MD, PhD. Session topics included: -Androgens, alemtuzumab, anti-cytokine therapies (anti-IL2R, anti-IFN gamma), daratumumab…

Urge Your U.S. Senators to Support the Bipartisan Letter to Increase Medical Research Accounts in the DoD

Original Publication Date

May 6, 2026

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DEADLINE MAY 8 Senators Roger Wicker (R-MS) and Dick Durbin (D-IL) are circulating a bipartisan letter to the Senate in support of increased funding for the Department of Defense’s medical research accounts, including CDMRP and BMFRP. You can help by asking Your Senators to Sign…

Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 May

Read more about Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 May

AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co

Inhibiting ferroptosis enhances ex vivo expansion of human haematopoietic stem cells

Original Publication Date

November 18, 2025

Article Source

External Web Content

Abstract Improved ex vivo expansion of human haematopoietic stem cells (HSCs) would considerably advance transplantation and genome-engineered therapies, yet existing culture methods still allow substantial HSC loss. Here we show that this attrition is driven largely by…

Understanding Bone Marrow & Stem Cell Transplants

Fact Sheet - Understanding Marrow & Stem Cell Transplants

This guide provides important information about bone marrow and stem cell transplantation

Understanding Clinical Trials

This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part

What is PRCA?

Pure red cell aplasia (PRCA) is a condition in which the bone marrow stops producing red blood cells that are responsible for carrying oxygen

Financial Resources

A list of organizations & programs that may provide financial resources & other assistance

Order Patient Educational Materials

Read more about Order Patient Educational Materials

AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure

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