Blood and Bone Marrow Basics
A patient's guide to understanding blood and bone marrow. Blood is a "circulating organ" of the body. It is composed of many different types of cells that are carried through the body in plasma. The blood helps to…
Pure Red Cell Aplasia (PRCA)
How to Evaluate the Quality of Online Health Information
As you search online, you will find websites from many different sources. These seven questions will help you analyze and evaluate the credibility of each site you review. Many of these details can also be found in a…
Community Connections
Would you like to connect with other patients and families in your own town? Learn how you can participate in our volunteer-led Community Connections-local groups designed to inspire the creation of community…
Find a Specialist
A bone marrow failure diagnosis of aplastic anemia, MDS and PNH is complicated, and the treatment options require oversight by a well-trained and experienced expert. But, finding an expert can be challenging. AAMDS has…
Understanding Brain Fog, Chemo Brain, with Dr. Jorg Dietrich
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jorg Dietrich, MD, PhD
In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments.
The impact of ABO compatibility on allogeneic hematopoietic cell transplantation outcomes: a contemporary and comprehensive study from the transplant complications working party of the EBMT
Original Publication Date
Article Source
External Web Content
Abstract The role of ABO blood group system mismatch on allogeneic hematopoietic cell transplantation (allo-HCT) outcomes is controversial since current publications of large datasets are lacking. We retrospectively analyzed 30,487 patients transplanted between 2010 and 2021…
Status Update Support is Growing to Restore Funding to CDMRP and BMFRP Research Programs
Original Publication Date
Article Source
Status Update
Thanks to the efforts of our AAMDSIF bone marrow failure community and coalition partners, a bipartisan group of 105 U.S. House and 29 Senate members urged their leaders to restore funding to the Congressionally Directed Medical Research Programs ( CDMRP) including the Bone…
AAMDSIF Calls for Restoration of Bone Marrow Failure Research Funding
Original Publication Date
Article Source
Coalition Action
The Aplastic Anemia and MDS International Foundation joined 156 other members of the Defense Health Research Consortium (DHRC) in calling for Congress to restore funding in Fiscal Year 2025 for the Congressionally Directed Medical Research Program (CDMRP) which includes the Bone…
Transplant and GVHD Session - 2025 Kansas City Patient and Family Conference
Topic(s)
Bone Marrow Transplant
In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.
Living Well with Bone Marrow Failure, from the 2025 Kansas City Patient and Family Conference
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.