AAMDSIF Services and Support

We provide many service and volunteer opportunities. Anyone can be a volunteer - there's no such thing as a "typical" or “one-size-fits-all” volunteer.

Volunteering opportunities vary greatly in both time commitment and activity.  You can do something as simple as sending an email to your Congressman or something as elaborate as a full-scale fundraising event. Here are a few things to consider:

• Become a Peer Support Network volunteer.  The Peer Support Network Connection program consists of a national network of volunteers, including patients, caregivers and family members, willing to listen and offer comfort and support to patients, their family members and caregivers. To become a volunteer you must have been diagnosed at least one year ago and complete a training.

• Hold a fundraising and/or awareness event in your area. Plan an event on your own in just a few short weeks, or pull together family and friends to organize a larger event.
• March for Marrow walks occur in numerous communities each year and we are always looking to add new ones.
• Join a Community of Hope support group
• Lead a Community of Hope support group. These volunteer led local groups are designed help create an ongoing, local organization supporting patients and families, and raising awareness and support for AAMDSIF.

We offer a number of informational and web-based services for people living outside the U.S. Our patient educator can respond to questions via email and/or phone. Educational packets can be sent by mail or regular mail. We also have more than 60 online education programs, including webcasts, webinars, interactive learning modules and interviews with experts. We are always looking for new opportunities to serve international communities through collaborations with local patient service organizations.

• Personalized Support from the Patient Help Line. A patient educator is standing by. Call (800) 747-2820 or email help@aamds.org
• Free educational materials, including the latest medical and treatment information and guidance on taking charge of your health care.
• Online courses let patients participate in live webinars, view archived webcasts, watch  interviews with experts and educate themselves through interactive learning modules.
• Peer Support Network Support Networks:  Speak with our trained patient peer support volunteers or join one of our volunteer-led Communities of Hope. These support groups provide emotional support and understanding and allow patients to share their treatment experiences.
• Patient and Family Conferences - Attend one of our regional patient and family conferences.   Hear from leading experts and learn from other patients.
• Subscribe to our free newsletters to stay current with research, medical advances and inspirational patient Stories of Hope.
• Find information on clinical trials clinical trials: Clinical research is at the heart of all medical advances, identifying new ways to prevent, detect or treat disease. If you have a bone marrow failure disease, you may want to consider taking part in a clinical trial, also called a research study. Understanding Clinical Trials Clinical… .
• Learn how to become a strong advocate for your own health care.