2025 Conferences
2025 Rockville Patient and Family Conference
Event Date: Sat, 03/08/2025 - 8:30am (EST)
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
PNH Complications with Philip Scheinberg
Aplastic Anemia
MDS and Transplant
Low Risk MDS
Debra's Story - Aplastic Anemia
MDS... Read more »
2025 Kansas City Patient and Family Conference
Event Date: Fri, 04/25/2025 - 5:30pm (EDT) to Sat, 04/26/2025 - 3:30pm (EDT)
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
MDS/MPN Overlap
PNH and Current Therapies
Living Well with Bone Marrow Failure
Judy's Story of PNH
Transplant and GVHD
Aplastic Anemia
PNH Complications
High Risk MDS
2025 San Francisco - Bay Area Patient and Family Conference
Event Date: Sat, 07/19/2025 - 10:30am (EDT)
Recorded Sessions:
Nutrition for Aplastic Anemia, MDS, or PNH
Managing PNH Treatments
Advances in Aplastic Anemia
What is PNH?
Transplant and GVHD: Aplastic Anemia and PNH
Inherited Bone Marrow Failure (focus on pediatrics)
Expert Panel: Pediatric Bone Marrow Failure
Life After Diagnosis -... Read more »
2025 Boston Patient and Family Conference
Event Date: Sat, 09/27/2025 - 7:30am (EDT)
Session Recordings Available:
MDS to MPN Overlap from the 2025 Boston Patient and Family Conference
High Risk MDS from the 2025 Boston Patient and Family Conference
Low Risk MDS from the 2025 Boston Patient and Family Conference
What is Aplastic Anemia? From the 2025 Boston Patient and Family... Read more »
2025 Chapel Hill Patient and Family Conference
Event Date: Sat, 10/18/2025 - 7:30am (EDT)
Recordings:
Aplastic Anemia
Low Risk MDS
High Risk MDS to AML
Transplant and GVHD
MDS/MPN Overlap
A Patient Story: Shauna McMillian
Managing PNH Complications
