Understanding the Paroxysmal Nocturnal Hemoglobinuria Journey | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Understanding the Paroxysmal Nocturnal Hemoglobinuria Journey

Sponsor

Logo for ExaField

Contact Info

Rosa Cruz

cruz@exafield.com

Start Date: September 2, 2025 End Date: September 2, 2026

Market Research Study If you are interested in learning more about your possible participation in this study, please complete the form. Your information will be forwarded directly to the study sponsor.

Purpose: 

The purpose of this study is to better understand the treatment journey and experiences of people living with Paroxysmal Nocturnal Hemoglobinuria (PNH), specifically those currently in a “watch and wait” period after being diagnosed.

Status: 
Recruiting
Bone Marrow Disease(s): 
Gender: 
Female
Male
Age Group: 
21 years and older
Accepts Healthy Volunteers: 
No
Inclusion Criteria: 

You may be eligible to participate if you:

  • Are 21+ years of age
  • Have been formally diagnosed by a physician with Paroxysmal Nocturnal Hemoglobinuria (PNH) within the last 5 years
  • Received your diagnosis at least 3 months ago
Exclusion Criteria: 

Find Out More:

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