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AAMDS Amy Gaynor Research Fund

Amy Gaynor was a tenth grade honor student at Cleveland Heights High School as well as a member of the girls’ varsity tennis team and swim cadets.  She belonged to an Amateur Athletic Union swim team and volunteered to teach swimming to children with disabilities. Amy was also a fine pianist.  But in 1977, at age 15, Amy was diagnosed with

My Life is Making a Difference

Person's Name: 
Denise Beauchemin

Beginning September 2012, I just wasn’t feeling quite right. I was increasingly fatigued and there were some perplexing bleeding incidents, as well. After many months I experienced partial vision – just little areas of vision that were blank. Internal bleeding in the eyes was causing this, and my eye doctor knew it was serious and even thought it could be leukemia.

Bone Marrow Disease(s): 

Solving a Diagnostic Mystery

Person's Name: 
Emma's Story, Part 1

In January 2016, my 9 year-old daughter Emma turned yellow. After seeing her regular doctor, we were sent straight to the hospital. They found that her liver enzymes were extremely elevated and sent us to a second hospital. After extensive blood panels and scans, they still couldn’t determine the cause of Emma’s liver inflammation, and so the process to find her a new liver began.

Bone Marrow Disease(s): 

An Unusual Route to Diagnosis

Person's Name: 
Jane Massey

Although it sounds strange, I am beginning to believe that breast cancer possibly has saved my life. In October 2015, I was diagnosed with stage 2 lobular carcinoma of the breast. My cancer was found during my routine mammogram. I opted for a bi-lateral mastectomy and then had 33 radiation treatments in early 2016.  I saw my oncologist every month due to my treatment and she ran blood work every time.

Bone Marrow Disease(s): 
Content source: 

Shares her 11-year-old daughter's story

Person's Name: 
Peggy Crosco

Brianna had always been a healthy young girl. We initially noticed some rather minor things with her but did not know at first how serious they were. She had low-grade fevers that went away during the day, but came back in the evening morning and there was her first-ever nosebleed. She missed school for a few days, so we saw her doctor. There is also a clotting disorder that run in our family – so I also wanted her to be checked for this because she had reached age where this should happen.

Bone Marrow Disease(s): 

San Diego

Thank you for attending the 2016 San Diego Patient and Family Conference.

Event Date: 
Sat, 09/17/2016 - 8:30am (EDT)
Conference Event Type: