patient

Battling Aplastic Anemia, Seeking Information

Person's Name:

Mary Swift

At the age of 3, I became ill with a rare blood disorder. I was bruising easily, and my platelet count was dangerously low. I was diagnosed to have ITP, had my spleen removed, and thought I was cured. However, my disease was either dormant or morphing into something else. My symptoms recurred with pregnancy, and after my second child was born, my disease was never dormant again.

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

web exclusive

Horse ATG Saves Young Equestrian

Person's Name:

Liviya Anderson

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

eBulletin / eInsider (story of hope)

My Son's Aplastic Anemia

Person's Name:

Sue Gabriele

My son Jamie was a very sick child. He was in full-time daycare at the age of 12 months, so he caught every cold and infection imaginable. He’d be on one antibiotic and then need another due to a secondary infection.

Bone Marrow Disease(s):

Content source:

eBulletin / eInsider (story of hope)

I’m working through aplastic anemia – my son helps me keep focused.

Person's Name:

John Vasquez

My

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

eBulletin / eInsider (story of hope)

Shares her 11-year-old daughter's story

Person's Name:

Peggy Crosco

Brianna had always been a healthy young girl. We initially noticed some rather minor things with her but did not know at first how serious they were. She had low-grade fevers that went away during the day, but came back in the evening morning and there was her first-ever nosebleed. She missed school for a few days, so we saw her doctor. There is also a clotting disorder that run in our family – so I also wanted her to be checked for this because she had reached age where this should happen.

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

eBulletin / eInsider (story of hope)

Fighting PNH While Helping PNH Patients

Person's Name:

Joe Ellenberger

I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.

I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.

Bone Marrow Disease(s):

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Content source:

eBulletin / eInsider (story of hope)

Saved by Her Twin Sister

Person's Name:

Kathryn Bradley

I was your typical 14 year old teenager who always enjoyed spending time with friends and playing sports. On and off for about two years, my parents would take me to see different doctors to figure out why I had aches and pains, stomach issues and fatigue.

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

eBulletin / eInsider (story of hope)

A patient and her parents find that giving back is its own reward

Person's Name:

Katie Begin

In March 2011, our daughter Katie had just turned 5 and we noticed small bruises all over her body. We wondered if they were happening at preschool. We went in for a visit with her doctor and we expressed our concerns. Blood work showed very low counts and we immediately went to the emergency room at Arnold Palmer Hospital for Children in Orlando. Katie went through many tests and a

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

eBulletin / eInsider (story of hope)

Related Diseases

Bone marrow failure includes other diseases and conditions that are related to aplastic anemia, MDS and PNH. AAMDSIF extends its programs, services and support to patients and families suffering from these rare diseases as well.