Patient and Family Webinars | Page 15 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Sat, 07/20/2024 - 9:45am (EDT) Low-Risk MDS Webinar: Low-Risk M-D-S
Sat, 07/20/2024 - 12:45pm (EDT) Nutrition and Bone Marrow Failure Nutrition and Bone Marrow Failure

Watch Past Webinar Recordings

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elie Traer from OHSU Knight Cancer Institute in Portland, OR will discuss what is refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Traer their questions.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Saurabh Chhabra from The Cancer Center at Froedtert Hospital in Wisconsin will discuss the latest advances in preventing and treating graft-versus-host disease(GVHD). He will also provide a brief overview of GVHD.

Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Jonathon Cohen from Winship Cancer Institute of Emory University will discuss relapsed CLL- what causes patients to relapse and how to treat relapsed disease. Participants will have the opportunity to ask Dr. Cohen questions.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Matthew Davids will discuss the advances in treating CLL. He will also provide a brief overview of the CLL diagnosis.

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Timothy Pardee from Wake Forest Baptist Health will discuss the challenges associated with treating AML in older adults and what treatment options are available.

Topic(s): Managing Your Treatment

In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.

Topic(s): Acute Myeloid Leukemia (AML)

In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.

Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

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Special thanks to Abbvie and Taiho Oncology

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