In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
| Tue, 06/18/2024 - 1:00pm (EDT) | Blood Transfusions and Iron Overload |
 |
| Sat, 07/20/2024 - 9:45am (EDT) | Low-Risk MDS |
 |
| Sat, 07/20/2024 - 12:45pm (EDT) | Nutrition and Bone Marrow Failure |
 |
Watch Past Webinar Recordings
Topic(s): Acute Myeloid Leukemia (AML)
- Presenter: Courtney DiNardo, MD
In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Amer Zeidan, MBBS
Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions
Topic(s): Acute Myeloid Leukemia (AML)
- Presenter: Daniel Pollyea, MD, MS
In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
- Presenter: Joanna M. Myers Casale, RD, CSO
Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.
Topic(s): Acute Myeloid Leukemia (AML)
- Presenter: Thomas LeBlanc, MD, MA
In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia
- Presenter: Kasiani Myers, MD
Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)
- Presenter: Matt Kalaycio, MD
In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia
- Presenter: Jaroslaw Maciejewski, MD, PhD
- Presenter: Bhumika Patel, MD
During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Sudipto Mukherjee, MD, MPH
Updates from the December 2018 convening of the America Society of Hematology on MDS.
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Joshua Sasine, MD, PhD
Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)
- Presenter: David Steensma, MD, FACP
Dr. Steensma explains the relationship between Agent Orange and Myelodysplastic Syndromes in this webinar.
Recorded on October 16, 2018
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Shyamala Navada, MD
Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)
- Presenter: Amir Fathi, MD
This webinar explains how myeloid malignancies form in plain language for patients and families.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)
- Presenter: Stephen Oh, MD
This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS.
Topic(s): Bone Marrow Transplant
Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF.
Topic(s): Managing Your Treatment
Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)
This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families.
Patient Education Sponsors
Our Diamond Level Sponsors:
Our Gold Level Sponsors:
Our Silver Level Sponsors:
Our Bronze Level Sponsors:
Special thanks to Abbvie and Taiho Oncology