Prednisone
Prednisone Prednisone: Prednisone a man-made version of a hormone produced naturally by the adrenal gland that can help reduce inflammation and stop allergic responses.
Pediatric
Bone Marrow Transplant
A bone marrow transplant (BMT) bone marrow transplant (BMT): A procedure where bone marrow stem cells are c
Iron Chelation
Iron chelation therapy Iron chelation therapy: (kee-LAY-shun) A drug therapy to remove extra iron from the body.
Blood Transfusions
A blood transfusion blood transfusion: A procedure in which whole blood or one of its components is given to a person through an intravenous (IV) line i
Blood Clot Treatment
Blood clots are very dangerous. If you have a blood clot blood clot: A mass of blood that forms when platelets stick together. Harmful blood clots are more likely to happen in PNH.
2024 Philiadelphia, PA, Patient and Family Conference
The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
Patient and Family Conferences
AAMDSIF hosts Patient and Family Conferences around the United States each year.
Caregivers - Take Care but HOW????
Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.
Advances in Treating Pediatric Aplastic Anemia
Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Susan Kirk, MSPAS, PA-C
In this webinar, Susan Kirk discusses the latest advances in treating pediatric aplastic anemia.
Susan Kirk, MSPAS, PA-C
Institution
University of Virginia School of Medicine
Physician Status
accepting new patients
Primary Disease Area of Focus
Pediatric